Yet these drugs will only help if you take them.
It’s crucial to start disease-modifying medicines as
soon as possible to ward off future damage, experts
say. “The Society and the Consortium of Multiple
Sclerosis Centers agree that as soon as patients
are diagnosed with relapsing-remitting MS, they
should be offered a disease-modifying therapy,”
Hartley says. “We know that the earlier we start
treatment, the better people do in the long run.”
“Most of our patients are on some treatment to
decrease the disease activity,” Dr. Bowen says. “We
tend to take a fairly aggressive treatment approach,
regardless of whether they have a milder or more
aggressive case.”
Beyond taking disease-modifying drugs, you can
take a number of other actions to ensure you
continue feeling your best.
Pay attention to the signs. Your body isn’t always
going to accommodate your daily routine, so you
need to accommodate your body. After more than
a decade of living with MS, Dodge has become
very aware of her capabilities. “I’ve really learned
what I can and cannot do, and what my limits
are,” she says. Learn when your energy levels tend
to peak each day; schedule errands and activities
around those high-energy periods; and rest when
you feel the most tired. Ask for help when you
need it.
Eat a healthy diet. There is no specific “MS diet.”
But universal healthy diet recommendations also
apply to people with MS. “People should follow
the basic high-fiber, low-fat diet that’s good for
everybody,” Dr. Kalb recommends. “But if there
are foods that make you feel better or don’t make
you feel as well, modify your diet accordingly.”
Exercise. While there is no specific fitness routine
recommended for those with MS, “staying active
protects your heart, strengthens your bones,
helps prevent obesity and diabetes, improves your
muscle strength and gives you more energy,” Dr.
Giesser says.
Sue Kushner, MS, PT, associate professor in the
School of Physical Therapy at Slippery Rock
University in Slippery Rock, Pa., agrees. “Exercise
such as strengthening, stretching and balance
activities, and coordination routines can certainly
help with function, mobility and overall fitness.”
Kushner says people with MS also need to exercise
for general health. “Just because you have MS
doesn’t mean you’re exempt from the normal
health risks that everyone else faces, including
diabetes, heart disease and obesity.”
Dodge does yoga, rides her bike and runs a few
times a week. “I always feel better after I exercise,”
she says. “If you’re looking for an MS-friendly
exercise program that won’t wear you out, try
swimming, tai chi or yoga.”
Relieve stress. Stress is toxic to good health, especially
when you have MS. Many people say their symptoms
get worse when they feel overwhelmed. “When I
have more stress, I can feel myself deteriorating,” says
Bernadette Couch. She and Sven unwind by relaxing
on their back porch, exercising or taking a ride in
the car. Others use meditation to tame stress (see
“Meditation—more than just ‘om,’ ” pg. 38).
Connect with others
While you’re caring for your body, look after
your emotional health, too. When you feel
overwhelmed, seek out support from friends and
family. “It’s a very volatile disease. Emotionally, it’s
like a roller coaster,” Sven says.
“You can only ride the wave and do what you can.
You can’t question it or fight it, because that takes
a lot of energy,” Bernadette adds.
Over the years, Sven and Bernadette have learned
to lean on each other. “I think we lend each other
a great deal of emotional support,” Sven says.