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MS activists
unite at
Public Policy
Conference
PHOTO BY JOE SHYMANSKI
As part of the National Multiple Sclerosis Society’s
annual Public Policy Conference,
more than 300 MS activists went
to Washington, D.C., on March
6 to urge Congress to preserve
funding for MS research and
drug approval.
After hearing from speakers
including Sen. Byron Dorgan
(N.D.)—the former co-chair of
the Congressional MS Caucus—
and political pollster Celinda
Lake, MS activists were briefed
on the importance of funding for
the National Institutes of Health
(NIH), the Congressionally
Directed Medical Research
Programs (CDMRP) and the
Food and Drug Administration
(FDA). The NIH has directed
about $725 million to MS
research in the past five federal
funding cycles, and the CDMRP
has supported more than
Share your motto on World MS Day
Young people across the globe who are affected by multiple
sclerosis will have their say on
World MS Day, Wednesday,
May 29.
In a multinational effort to
raise awareness of the disease, via
WorldMSDay.org, six young
people with MS from countries
as diverse as Tunisia, Portugal,
Argentina, India, Russia and the
United States, will share their
stories and the mottos by which
they live. Other people who have
MS or who care for people with
the disease can upload their own
MS WON’T HOLD ME BACK
I will be what I’ve always wanted to be
What’s your motto?
mottos, which can be read in
five languages (Arabic, French,
English, Portuguese and Spanish).
To share your own motto
and discover more ways
to participate, go to
WorldMSDay.org. n
MS symptoms usually start between the ages of 25 and 31 and can last a lifetime.
Praneel was diagnosed with MS aged 18. This is his motto for a lifetime living with MS.
Visit worldmsday.org
At a time when young people may be starting new careers,
relationships and making plans for the future, being diagnosed
with a chronic and potentially disabling disease like MS can lead
them to re-evaluate everything they know.
Find out more about Praneel’s story on the 29 May. Until then, show
your support for World MS Day and inspire the world by sharing a
motto that gives you strength, even in the most challenging of times.