In “Unlocking the Puzzle of
Progression” (Summer 2011)
we left out a key book on the
subject, Living with Progressive Multiple Sclerosis:
Overcoming Challenges, by
Patricia K. Coyle, MD, and June
Halper, APN-C, MSRN, FAAN,
now in its second edition from
Demos Medical Publishing.
An approach to
Primary-progressive MS has dealt
this 76-year-old guy the following
inspiration: MS=Triple A: Anticipate, Adjust and Adapt. It works!
Gerard Stever, Kansas
I’m 69 years old and was diagnosed with primary-progressive
MS about 15 years ago. My
neurologist said that there was no
medical treatment available and
basically told me to do physical
therapy. When I asked about
yoga, he brushed it off.
Over the years, yoga sig-
nificantly helped my flexibility
and well-being. I’ve also started
Ampyra, which has allowed me
to stand unassisted, walk a few
steps without a device and walk
long distances (for me) with my
Our children may
hold the key
Wouldn’t gathering information
on our children be beneficial to
us and to their future? If we had
a database full of our children’s
medical and environmental histories and updated it yearly, we
could see what changes occurred
in those who developed MS.
Shelly Strickland, via e-mail
We are starting to do this with
children with MS. The Society
has established a Data Coordination and Analysis Center at the
University of Utah, Department of
Pediatrics. It is working with the
If You or Someone You Know Has MS
Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve
quality of life for many people with MS. Talk to a health-care professional or contact the National MS Society to learn about this and
other ways to help manage MS.
Address Drop, Add, or Change
Enclose your label and request in the Join the Movement envelope
on page 36 or telephone us at 1-866-675-4787.
Let us hear from you!
email@example.com or send mail
to Momentum Editor, National
MS Society, 733 Third Avenue,
3rd floor, New York, NY 10017. We
need your name and address, but
we won’t print your name if you so
Network of Pediatric MS Centers
to analyze information collected
from children with MS and related
disorders. In addition, the Network
was recently awarded a five-year
NIH grant to study the genetic
and environmental risk factors in
children with MS.
For more information and to
get involved, visit nationalMS
—Deborah Hertz, MPH,
associate vice president, Medical
Programs at the Society
Baking for dollars
Last October, my nine-year-old
son Brian asked
if we could do a
bake sale to raise
money for MS.
With the help
of many friends,
he, my other son,
Timothy, and my
Kudos, Kim! Community events are
really taking off. See “Our Space”
on page 54 of this issue.